It’s just a pair of shoes

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I was introduced to Peach’s Neet Feet (PNF) through Clinton Milliken. Clinton Milliken was a 7 year old Cancer warrior Ninja – who fought Medulloblastoma, a brain cancer, for over two years and stole my heart in an instant. Clinton was only on this earth for 7 short years, one month and two days, but his impact has been powerful. He and his Mom created Clinton’s Club a non-profit organization that supports families affected by Pediatric Cancer in his memory and strives to change the statistic 46/7. Clinton loved Random Acts of Kindness (RAOK) and specifically requested them to be performed on his last birthday with us (12/17). Therefore, it is no surprise that Clinton loved Peach and her mission! Two peas in a pod. (www.clintonsclub.org)

 PNF is a grassroots custom shoe donation project. Madison Steiner and her team of guest artists hand paint and donate canvas shoes for children battling cancer, serious illness, and lifelong disabilities. Shortly after meeting Clinton, he received his pair of PNF’s and oh how he loved those shoes! I remember how amazing they looked, but more vividly I remember how they made Clinton feel. Clinton’s PNF’s brought him Joy and made him smile that smile. He used descriptive words like “cool”, “colorful” and “special” to describe his shoes. You can see some snazzy photos of Clinton’s shoes here: http://www.peachsneetfeet.com/theirstory/57-clinton.Image

 Being introverted naturally lent Clinton to be a thinker and he had an amazing analytical mind. He told me all about the process of painting shoes, and how he had picked what should be on his very own. Clinton’s shoes were sponsored by Fletcher Christian, a complete stranger. We probably never thanked him appropriately, but as I wrote this post I thought about him and decided to message a note of thanks. Better late than never! This is the reply I received today “Well, no thank-you was ever needed. As odd as it may be Clinton had a very big impact in my life, and helped initiate a change for the better. But, I did it in the first place just to help bring a smile to someone who needed it” I’m telling you people – this is where the magic starts! It may seem like just a pair of painted shoes, but it’s so much more. We all knew Clinton as a cheeky 7 year old hero. Our hero, who touched the lives of complete strangers – and still is to this day.

 There always seems to be a story to tell, that is – if you pay attention.  Not just listening, but really putting “feet” to the needs of those around you. I specifically remember my father refusing to hear negative words spoken, and he certainly would not tolerate laziness. I can not recall exactly what prompted this life lesson, but I do remember being very young and riding with him to a place where others had far less than we did. I can still hear his words –“no matter how bad you think your current situation is, there is always someone who has less than you, yet show far more gratitude.” He usually ended these discussions with expectations of ways we should contribute. Perhaps this is one of the reasons I was immediately drawn to Peach’s Neet Feet and Madison’s incredible vision. So after Clinton received his shoes, I quickly checked out the PNF website www.peachsneetfeet.com and began following their efforts via social media. Talk about love at first sight! I knew I had to sponsor shoes for more kids – and spread the word of this fantastic non-profit. Soon, my friends were contacting me, begging me to get them an “in” so they too could sponsor shoes. There really is no “in” – just send them your money!  I have always said – there was just something special about Clinton – and Peach saw it too. She dedicated this piece to our Ninja King. (Watch all the way to the end!)

http://www.youtube.com/watch?feature=player_embedded&v=IB8Uvf9JqhM

 Fast forward a year full of connections and opportunities to sponsor shoes. I have experienced an immeasurable amount of joy by sponsoring and watching these kids receive their shoes. At this point, I just go online and send money to Peach and her team works their magic. In a somewhat routine email, I received notification that my last donation had sponsored some rocking PNF’s for not only a Leukemia warrior – but a Down’s Syndrome (DS) Leukemia warrior! If you are not aware – kids with DS are at an increased risk for Leukemia – but it’s a double edged sword. The very genetic mutation that lends itself to better NED rates, are the very same mutations that increase the risk of Leukemia.  It’s hard to put into words exactly what happened next. Somehow through the magic of social media, Keeton’s mom, Misty and I realized that we are long lost sisters or something! In the very short time since Keeton received his PNF’s, I learned that his parents wanted more than ever to have a 3rd birthday party for him –and just have one day of being a “normal” kid. However, going from two incomes to one while fighting childhood cancer just doesn’t save room in the family budget for birthday parties. WHAT? I could provide that! I immediately fell in love with Keeton – from a photo. I printed it out the same day I received it – and there it has stayed on my refrigerator and in my Bible – a reminder to pray for this child each day. Most mornings, Keeton is the first thing I see. Keeton loves Blue’s Clues and my heart was stolen by Keeton. So – with some help from other Clinton’s Clubbers, we planned, created, and crafted our way into creating a Blue’s Clue’s Birthday Bash to beat the band! Volunteers came together with countless hours of crafting and executing. None of our volunteers knew Keeton, nor would get the chance to meet him. At the time that I committed, I didn’t even know where he lived – but anywhere is accessible by aircraft – right? As it turns out, we only live 3 hours apart! I drove from Nashville with my son – and a car loaded full of Blue (and a cake that made it over Monteagle mountain doing – you know, the speed limit!). We had 30 minutes of set up time – never seeing the party location, but with Keeton’s local friends, we pulled off a fantastic Blue’s Clue’s themed party. It was an amazing experience, one that has changed my life for sure. To be able to watch this little guy dance, play and eat cake with that fabulous smile – worth every minute and more. Today, Misty posted this on my facebook wall: “Lori, on days my faith is weak and doubts flood my mind… I know a greater power is there watching and waiting for the perfect time to send a special someone into your life. It’s truly amazing how a pair of shoes could change our life, but those magic shoes have touched our hearts and our life in more ways than I can count. You could’ve sponsored any child, but you fell in love and chose this precious ray of sunshine named Keeton. It was an instant love and connection for all of us with you and your family. It feels like we’ve known each other forever and we are truly blessed & honored to call you all family. God’s ultimate plan♥ Life hasn’t been easy and not having family has been even harder. I’m so thankful for having you in our family. I would be lost without the love and support from our “c” family. Thank you God for blessing us with you♥.

 

 My favorite Keeton story is yet to come, I just know it.  I can not wait for the day that we celebrate his “I Love you’s” spoken to his Mom. During my short visit, Misty told me how she had the chance to take Keeton to Disney on Ice recently. He does not communicate with words, but the joy in his heart and his level of excitement was so overwhelming that each time a new character came on the ice, he turned around and hugged his Mom. I love this. This is a true representation of a PNF warrior. 

 It really is an amazing thing. They are just a pair of shoes. Instantly family through a pair of shoes?  I never set out with the intentions of being thrown into the Childhood Cancer world – but no one ever does. I have been blessed to know these families and what they give to me is far more than I could ever give back. I have loved with them, lost with them – and will fight with them to change this unequal equation of funding for a cure. It’s mind boggling really. There are too many beautiful families to mention in one post, but I can assure you one quality they all possess for sure. They spend their time living. Sometimes moment by moment, but never just waiting for death to occur. Until the last breath their child takes they fight and have hope, they raise each other up. They love like nothing I have ever seen. They celebrate the smallest of things – like band-aid drives and plastic bracelets with each other’s names on them.  I have witnessed more living and more life experiences wrapped up in short lives than some who live 85+ years ever experience.  It’s true, I’m a volunteer – but I get paid. BIG.  As I was pulling away from the party (the first time – Misty led me to the hotel, but couldn’t keep driving home as planned. She had to pull in and get out to say good-bye one more time) little Keeton slapped his hand over his perfect little mouth and blew kisses to me. Misty was stunned. She didn’t think that Keeton really connected with others, but he did.  I have a feeling there will be a lot more of those blown kisses delivered, and I can’t wait to catch them!

 So, yes – it’s just a pair of shoes. A magical love-filled pair of shoes. Thank-you Madison and PNF for allowing us to be part of your tribe.

 “He will wipe every tear from their eyes. There will be no more death’ or mourning or crying or pain, for the old order of things has passed away.” Revelation 21:4

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Hope’s coming like a fire and its’ burning bright – Colors for Hope

Colors for Hope has (rightfully so) received a lot of press and media coverage in the past few weeks.  For those of you that are already our facebook “fans” – we thank-you for following us and for believing in our efforts.  We only act as the vessels of delivery for these beautiful children and the Hope that they inspire. We promised our little fighter, Clinton that we would carry on, and that we will do.  Kim presented the information to the Clinton’s Club executive board and we agreed to sponsor Colors For Hope.

Colors for Hope was inspired by a spoken wish from our Tay (Taylor Filorimo) to Clinton’s Mom,  Kim. Tay wanted to create her own nail polish – and she even knew what specific shade of Lime Green she wanted. This girl knows what she wants!  Kim has the incredible ability to just make things happen. Kim did all the background work to make this wish come true for Tay, and the rest of us struggle just to keep up! Tay’s Color For Hope  is Lime Green and is aptly named “Pray 4 Tay” – as this has been her personal campaign all along.  If you know Tay or have followed her story, you will see that this is not just a quote from her, but the way she faces every day -“I will NOT let the FEAR of cancer STRIKE me out”–Taylor Filorimo.  Our Clinton loved his Tay as does everyone who meets her.  To learn more about Tay, watch this video that tell’s Tay’s story and if you haven’t heard it ~ you should listen to it – it’s her song – “She’s a Hero – Tay’s Song” http://www.youtube.com/watch?v=hfNh2LSCNP0&feature=share. Here’s a photo of Clinton and Tay that was taken last March.

Of course, just one Color For Hope was not enough for Kim so we developed the inaugural set of 9 colors, honoring those who still show us how to battle, or in memory of the couragous others we have lost. At least one of us (and usually all of us) has a personal connection to these children.  Our current colors are here:

 Now  – here’s the great part – we launched the sale of our original order and were completly blown away by selling out 100% of our inventory in under 4 hours.  We had not even completed our press releases – this was all acheived through social media alone.  We have tried to keep the associated costs very low because we want our administrative costs low and our giving dollars high.  We have many orders that have been sitting waiting to ship out as soon as the product arrives. We expect arrival date to be Monday, May 21st – so if you have not received your order – it’s on it’s way – we promise. We sold all over the United States – and then went global with orders from England, Germany and South Africa. Amazing!

 You may order one single bottle of any color – for $8. The entire set of all 10 colors is now $70 (the inaugural set pictured above had 9). Let me explain some of the confusion on shipping. The shopping cart on our website adds $5 shipping for each order. So, if you order 4 Ninja Blues it will automatically add $20 shipping. If you need multiple bottles of one color – please email lori@clintonsclub.org and we’ll create a seperate invoice and send it to you via paypal.  To place an order – visit our website www.clintonsclub.org and click on the second tab – Colors For Hope.

So what are we doing with the money? 100% of the proceeds will stay with Clinton’s Club to be used for all kids with cancer in our area. So far, we have sponsored events and provided media coverage and assistance for other events in our area – but we are mostly still in fund-raising mode. We have not spoken this publicly – but we are saving every penny that we can (donations, yes – we’ll take them!) because it is our dream to open up – Clinton’s Clubhouse on December 17th on what would have been Clinton’s 8th birthday. We are praying this will happen and the funds will be there. We know the property we want, now we just have to wait for it to all work out! Clinton’s Clubhouse will serve as a place where Cancer kids and their families can come for fellowship with each other, counseling and classes – as well as fun things – such as camping and “feeshin”!  We have plans for art classes, Mom’s Day out, etc. We are working on room sponsors and so many other things – it will make your head spin!

Thank you- thank-you for your continued support of us!

www.facebook.com/clintonsclub

www.facebook.com/colorsforhope